Hybrid Event (Leeds Marriott Hotel)
United Kingdom
»Ê¼Ò»ªÈË
We aim to amplify the voices of children and young people with epilepsies and bring professionals together to support the ongoing quality improvement in paediatric epilepsy care in England and Wales.
Hosted by Epilepsy12 and OPEN UK, this conference serves as a pivotal platform to address critical issues, exchange knowledge and shape the future of epilepsy care in the United Kingdom.
Epilepsy12 is a national clinical audit programme committed to enhancing the quality of care for children and young people with epilepsy in the UK. By collating data, identifying areas for improvement, and implementing evidence-based strategies, Epilepsy12 aims to drive positive change and optimise outcomes for those living with epilepsy.
OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK) is dedicated to improving the lives of children and young people with epilepsy through collaboration, innovation and advocacy. By facilitating networking among healthcare professionals, sharing best practices, and promoting research, OPEN UK strives to advance epilepsy care and support across the UK.
Poster submission
Thank you to everyone who submitted a poster for this year's conference. The Epilpesy12 team were pleased to read the fantastic quality improvement work ongoing in local services.
Selected posters were displayed at our in-person event and will be shared on our website after the event.
Conference programme
Dr Sophia Varadkar, Deputy Medical Director at Great Ormond Street Hospital for Children NHS Foundation Trust, chairs the event. The below presentations are featured:
Children and Young People Engagement
- Epilepsy12 Youth Advocates - RCPCH&Us Team and Epilepsy12 Youth Advocates
- Impact and Influence Project - RCPCH&Us Team
- Engagement Project in 'Understanding Experiences of CYP with Epilepsy from Marginalised Communities' - Emma Rigby and Nick Morgan, Association for Young Peoples Health (AYPH)
Audit and Quality Improvement
- Epilepsy12 Update - Dr Colin Dunkley, Epilepsy12 Clinical Lead
- Epilepsy Quality Improvement Programme Update - Melanie David-Feveck, EQIP Project Manager, Dr Lanthe Abbey, York Teaching Hospitals NHS Foundation Trust, Fiona Lead, Children's Epilepsy Nurse, Hull University Teaching Hospitals NHS Foundation Trust
- OPEN UK Update - Dr Richard Brown, OPEN UK Working Group Chair
Research in Epilepsy
- Health Economic Modelling - Lisa Cummings and Joseph Lillington, Health Economics England
- NHS England Mental Health Screening Pilot Programme - Jim Pauling, Wirral University Teaching Hospital NHS Foundation Trust & Victoria Grey, Alder Hey Children's Hospital Trust
Contact
The Epilepsy12 project team members are available to respond to any related queries at epilepsy12@rcpch.ac.uk or on Tel: 020 7092 6157