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Adverse childhood experiences – consultation response
In 2017 we responded to the Science and Technology Committee’s inquiry into evidence-based early-years intervention.
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Beginner's guide to genomic testing: Who, what and how - webinar recording
In March 2023, we invited Dr Harry Leitch to speak about genomic testing for paediatricians. He shared insights from his own experiences in the NHS, followed by an interactive Q&A session.
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Being me - supporting children and young people
What keeps children in care happy, healthy and well? Care-experienced children and young people worked with RCPCH &Us to create these free resources, including 'health and wellbeing passports', a poster and games to help share who they are, how they are feeling and what support they would like - as ...
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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study and previous months.
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BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings
More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...
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Care of unaccompanied migrant children and child victims of modern slavery – consultation response
We responded to the Department for Education in 2017 with recommendations that child health professionals be included in the assessment process to determine whether a child is the victim of modern slavery and human trafficking. Government must allocate more financial resource in order for Local Auth...