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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

BPSU

Conditions

Rare disease

Engaging children and young people

Children and young people's voice

Patient experience

Patient involvement

Research

Resource

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2023, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

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Epilepsy12 Round 3 Methodology and Datasets

Round 3 of the Epilepsy12 audit was delivered between 1 April 2017 and 31 March 2022. This page provides details on the methodology and data submission process for Round 3. This methodology extends to Round 4, Cohort 4.

Neurology

Conditions

Epilepsy

Resource

National Paediatric Diabetes Audit (NPDA) Hospital admissions and complications reports 2011-2020

The NPDA admission reports summarise acute emergency hospital admissions where the primary diagnosis is related to diabetes in children and young people cared for in Paediatric Diabetes Units (PDUs) in England and Wales.