All resources

Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Resource

Allergy care pathway for asthma and/or rhinitis

Asthma is typically associated with chronic inflammation and hyperresponsiveness of the lower airway leading to airway narrowing. Rhinitis is characterised by symptoms including rhinorrhoea (watery, runny nose), sneezing, bilateral nasal obstruction (congestion) or itching. This is one of several al...

Resource

BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

BPSU

Rare disease

Research

Document

BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

BPSU

Rare disease

Research

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

BPSU

Conditions

Rare disease

Engaging children and young people

Children and young people's voice

Patient experience

Patient involvement

Research

Document

BPSU reporting instructions

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study and previous months.

BPSU

Rare disease

Research

Document

BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings

More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...

BPSU

Rare disease

Public health

Resource

Children’s Cancer Services in England – consultation response

In 2019 we responded to NHS England’s consultation on cancer services for children, teenagers and young adults. While we welcomed the direction of travel we identified a number of areas for improvement.

Resource

Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 (PIMS) - national consensus management pathway

Most children are asymptomatic or exhibit mild symptoms from COVID-19 infection. However, a small number have been identified who develop a significant systemic inflammatory response, which is also known as PIMS-TS or PIMS). In September 2020 a national consensus management pathway was published to ...

Immunology

Intensive care medicine

Rare disease

COVID-19

Document

Paediatric sub-specialty training - application guidance

In the UK paediatric training programme, it is possible to sub-specialise during specialty level training (ST5-ST7). Applications are made through a competitive recruitment process. Those who complete an approved programme of sub-specialty training are eligible to enter the GMC (General Medical C...

Allergies

Community child health

Intensive care medicine

Mental health

Neonatal medicine