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Surveillance of deaths in children and young people with epilepsy (excluding Scotland) commenced in October 2016. The study team were hoping to determine the size of the problem of deaths in children affected by epilepsy, to compare the differences between sudden unexplained death in epilepsy (SUDEP...

Surveillance of congenital Zika syndrome in infants under and including six months of age in the UK and Ireland commenced in April 2016. This study aimed to identify all babies with microcephaly or neurological abnormalities born in the UK and Ireland to mothers who have travelled to countries with ...

Surveillance of childhood disintegrative disorder (CDD) concluded in November 2017 and is in the follow-up period of its data collection. The study will provide important information regarding the number of new cases of CDD in the UK and Ireland, the clinical presentation management of those with CD...

Surveillance of Progressive Intellectual and Neurological Deterioration (PIND) in Children (including Creutzfeldt-Jakob Disease) through the British Paediatric Surveillance Unit began in May 1997 with the main aim of determining whether or not a child has developed variant Creutzfeldt Jakob disease ...

Surveillance of congenital rubella in the UK up to the age of 16 years is carried out by the Integrated Screening Outcomes Surveillance Service (ISOSS) on behalf of the NHS Infectious Diseases in Pregnancy Screening Programme. Congenital rubella is a notifiable disease. However, to support the s...

National surveillance of HIV infection and vertical HIV exposure is carried out by the National Surveillance of HIV in Pregnancy & Childhood (NSHPC) and covers all infants born to HIV positive women in the UK and Ireland, as well as all children diagnosed with HIV (regardless of country of birth) be...

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a retrospective epidemiological review of all-cause mortality in the four nations of the UK.

The BPSU is committed to ensuring that patient and public involvement (PPI) is embedded in its work in every way possible. The unit works with investigators to encourage and support public and patient involvement in their research. The information provided here is designed to support, not replac...